The following statement was given today in the House of Assembly by the Honourable John Haggie, Minister of Health and Community Services:
Mr. Speaker, I rise today to recognize May as cystic fibrosis awareness month.
Cystic fibrosis is the most common fatal genetic disease affecting Canadian children and young adults. There are currently more than 4,200 Canadians living with this devastating disease, including 85 Newfoundlanders and Labradorians.
Cystic fibrosis occurs when a child inherits two abnormal genes, one from each parent. Approximately one in 25 Canadians carries an abnormal version of the gene responsible for the disease.
Cystic Fibrosis Canada is committed to finding a cure. It has invested $244 million in funding research, innovation, and clinical care, making it an international leader in the cause. As a result, Canadians with cystic fibrosis have one of the highest median survival rates in the world.
Cystic Fibrosis Canada is organizing activities and events this month to raise awareness and funds to support research, care and advocacy initiatives. Cystic Fibrosis Canada is committed to ensuring that those living with this disease have access to the treatments and medications they need to live a longer and healthier life.
I ask my colleagues in this Honourable House to join me and support the Newfoundlanders and Labradorians living with this disease by learning more about cystic fibrosis and by raising awareness in your community.
Thank you